I have been so happy with my Starkey hearing aids after audiologist tested me last year. I learned ASL once but need a refresher course but what I like about my Starkeys is that I can adjust them on their App on my phone.
I am so glad they are working for you! I am still adjusting, and I tried the app (mine come with an app too) but I can’t do bluetooth - it gives me a headache, so I dropped the app. But I can adjust them manually.
This makes me so sad because I think to myself, how could those parents miss so much that was going on with their child? How out of touch, distracted or self absorbed were they to not notice these things? Did they just expect the child to "grow out of it." Sorry but as a mother who had to chase down so many things that were interfering with my child's learning, it's very hard to hear.
They knew I couldn’t hear well but they didn’t want me to be stigmatized by this. Their strategy was to send me to a private school where the classes were small and quiet (this helped and cost them a fortune and saved their vanity). I think it was a very different time when anything that wasn’t “normal” was looked down on. Yes, it also makes me feel really sad because the fix is relatively simple (although my insurance has a lot to do with it because hearing aids are NOT cheap) and because it has impacted my life in so many ways! But I also realize that we as a culture just refused to allow for difference and disability. Things have changed enormously since the late sixties/early seventies. In part they changed because parents like you have insisted on support.
Glad you’re getting help. There is no known treatment for Hyperacusis other than TRT, which doesn’t help much. Hearing aids make it worse, much worse. Thanks for engaging in this conversation, which is important to people like me.
More people are hearing impaired than have diabetes in the US - that is a LOT of people - and most are young! I want to share my journey because there are always so many of us who aren’t able to share. I am still amazed at how much we don’t know.
Wow 🤩 I have such a similar story! HYPERACUSIS! It’s brutal oversensitivity in addition to severe hearing loss. Nobody understands!! Believe me, it’s more isolating than you folks with “normal” hearing will ever know! Audiologists and ENT‘s don’t get it either, for the most part. Please consider that the next time you think one of us is being arrogant or “not trying”. Jas
Yes, we’ve all been living through a really long period of time when society tried to ignore people with disabilities and special needs, and thanks to so much advocacy on the part of disability justice warriors, things are starting to change. I was very surprised that the Audiologist was able to address my concerns and that my brain seems to be adapting (as she said it would) to these new devices.
I have been so happy with my Starkey hearing aids after audiologist tested me last year. I learned ASL once but need a refresher course but what I like about my Starkeys is that I can adjust them on their App on my phone.
I am so glad they are working for you! I am still adjusting, and I tried the app (mine come with an app too) but I can’t do bluetooth - it gives me a headache, so I dropped the app. But I can adjust them manually.
This makes me so sad because I think to myself, how could those parents miss so much that was going on with their child? How out of touch, distracted or self absorbed were they to not notice these things? Did they just expect the child to "grow out of it." Sorry but as a mother who had to chase down so many things that were interfering with my child's learning, it's very hard to hear.
They knew I couldn’t hear well but they didn’t want me to be stigmatized by this. Their strategy was to send me to a private school where the classes were small and quiet (this helped and cost them a fortune and saved their vanity). I think it was a very different time when anything that wasn’t “normal” was looked down on. Yes, it also makes me feel really sad because the fix is relatively simple (although my insurance has a lot to do with it because hearing aids are NOT cheap) and because it has impacted my life in so many ways! But I also realize that we as a culture just refused to allow for difference and disability. Things have changed enormously since the late sixties/early seventies. In part they changed because parents like you have insisted on support.
Glad you’re getting help. There is no known treatment for Hyperacusis other than TRT, which doesn’t help much. Hearing aids make it worse, much worse. Thanks for engaging in this conversation, which is important to people like me.
More people are hearing impaired than have diabetes in the US - that is a LOT of people - and most are young! I want to share my journey because there are always so many of us who aren’t able to share. I am still amazed at how much we don’t know.
Wow 🤩 I have such a similar story! HYPERACUSIS! It’s brutal oversensitivity in addition to severe hearing loss. Nobody understands!! Believe me, it’s more isolating than you folks with “normal” hearing will ever know! Audiologists and ENT‘s don’t get it either, for the most part. Please consider that the next time you think one of us is being arrogant or “not trying”. Jas
Yes, we’ve all been living through a really long period of time when society tried to ignore people with disabilities and special needs, and thanks to so much advocacy on the part of disability justice warriors, things are starting to change. I was very surprised that the Audiologist was able to address my concerns and that my brain seems to be adapting (as she said it would) to these new devices.